13-year-old Georgia and her vibroacoustic ball pit

Meet 13-year-old Georgia, who was diagnosed with Gorlins Syndrome at birth.

She communicates using a computer, and can only consume liquid food.  Georgia is a wheelchair user, suffers with uncontrollable epilepsy and is blind to everything other than bright lights.

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Georgia’s father Kevin has worked for Royal Mail since 2016, and her mum Katrina is her full-time carer.

At school, Georgia responds well to light and sound, so the family wanted to create a soft and safe sensory area at home for her. 

The family applied to the Fund for a double therapy chair and a vibroacoustic ball pit. The ball pit has a corner musical seat and has speakers and lights which Georgia loves and responds to. 

Her sister Amy says:

Georgia was so happy to receive a grant from the Fund. Georgia has always benefited from sensory lights and music, as they often help her remain calm and help her to self-regulate when she is heightened.

Georgia has spent a lot of time between the two items and loves feeling the beat of her favourite song Nothing’s Gonna Stop Us Now in the vibroacoustic ball pit. Georgia is even tolerating her young nephew in the ball pit as she’s so relaxed with the new product.

Once again, thank you so much for bringing more positivity to Georgia’s daily routine, especially after she struggled with the pandemic.”


If you've been inspired by Georgia's story, and would like to ensure that we can continue support others like her, please consider making a donation. It's quick, easy and secure.

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